Tuesday, June 12, 2018

4 Ways To Support A Person With Genetic Disorders

 

You inherit genes from the parents, and experts can only alter them to a limited extent. Some of the genetic disorders are apparent at birth while doctors diagnose others diseases at different stages of childhood or adulthood. According to a recent survey, every one child in 25 children is affected by a genetic disorder. Therefore, to awaken you to lend a helping hand to them, here is a list of a few ways in which you can support someone with a genetic disorder.

·         Be understanding:
Being understanding can be of the most helpful ways to support the person with a genetic disorder and his/her own family. Being diagnosed with a genetic disease can change the entire family's priorities and the way they take up things. It changes their perspective to deal with things and can make the family life a little more demanding and hectic. Being able to understand what the person and the family are going through is a perfect way to sympathize with them. Therefore, one must try to be accommodating with the families of the ones dealing with a genetic disorder and understand that their schedule might not be as flexible. 

·         Do not make assumptions:
It is essential to understand that making assumptions does no good, to neither you nor the affected person. The family or the individual, himself/herself, might feel upset and frustrated on being assumed inappropriately on their condition. Therefore, it is always better to know more and even if there are some assumptions, put them forward in the most polite and understanding very possible. Reading up facts before generalizing will help up to a significant level. You can read Chapter 18 Regulation Of Gene Expression to know more.  

·         Do not underestimate someone with a genetic disorder:
It is wrong to assume that one cannot do a specific task just because they are suffering from a genetic disease. It is wrong to make assumptions based on their medical conditions that they would be incapable of doing something physically or intellectually or in any other possible way. However, their health condition might be critical but generalizing and assuming them incapable of something will not do any good. One must not make generalizations that lead you to underestimate a person's ability. 

·         Use Sensitive Language:
It is essential to use polite and simple language when you are talking to the person affected by a genetic disorder or his family. They might not like you to address them as 'sufferers.' It can make their families upset and prevent them from keeping hope and a positive vibe, leaving them frustrated. Therefore, you must not use words with a negative connotation. Instead, opt for neutral language, which is not hurtful. For this, you can notice the language in which the parent talks about the child. Try to adopt the same mannerism and tone. 
Hence, you must have understood how these ways would surely be helpful for you to provide a shoulder to the ones affected by the genetic disorders and their families.

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